Care And Pretend

I am drowning in care and caring.

Why is it that “care,” the essence of a compassionate and deep human emotion, has been reduced to an empty word used in all kinds of transactional exchanges?

Health care, medical care, customer care, intensive care, custodial care, caregiver/caretaker – really how come these two words mean the same in spite of the fact that someone gives and someone “takes” here?…And the list goes on.

It’s a fact that the last few months have changed my life. It has nothing to do with caring; yet it has everything to do with “care.” Spending so much time in hospitals, rehab centers, doctors’ offices, calls to insurance companies, medical suppliers, pharmacies, surrounded by care-givers and health care “professionals.” And all this time, my sense and sensibility assaulted by all kinds of uncaring acts – all offered in the context and pretext of caring.

Physicians who avoid eye contact and look bored to tears when your loved one’s life is hanging from a thread – their iPhone sliding out of the white coat pocket to see the text messages while you are waiting desperately for hope, some thread of the invisible yarn to living. Nurses who leave the hardest non-medical tasks to nursing aides just because it is considered beneath them to do the “dirty” work. Social workers who don’t know the first thing about sensitivity and can be worse than lawyers (no offense to my ilk) and psychologists who try to analyze your mother in determining your mental state while  you are faced with a life changing paraplegia.

Rehabilitation – a word that to me, the executive and business oriented mind only meant reform of some kind until a few months ago – has now taken a whole new dimension for me. Nothing but a big, counterfeit and pretentiously “happy” concentration camp where the goal is “re-entry” and adjustment to daily life. No time to absorb the impact of what has happened, no space to think, mourn, reflect – just a cogwheel that keeps on going while you are violently drawn into your inevitable and everlasting acceptance of the change.

Chirpy and smiling recreational therapists – had no clue what that professional classification meant until recently – who come in with these bizarre ideas yanking you out of bed to force you to have “fun” in this new way of living for you – “why not think of taking up hand-biking?” Absurdity galore in an environment where pain, disease and disability float in the air with comments such as: “oh, dear…you were sent to the intensive care unit and then two more patients followed suit. You are such a trend-setter!..”

Maybe someone, somewhere might have found the comment cute – an unfortunate attempt to cheering my husband up. But, come on – who on earth would come up with such a comment? While I can see the philosophy of rehabilitation on canada pharmacy and the need to adjustment and re-training and physical therapy, I feel sick every time I think of the weeks he spent  at the rehab center.

We live in a society where politeness has been disguised as pretending. And within the professional trait of “caring” we are often taught to pretend since we don’t really care. But while some liars are better than others, pretending in most cases does not cut it. Especially when it’s supposed to be your choice of a job miserably performed.

Sometimes I think it’s just me. I am not a doctor – even though I have spent more than half of my life with one – and now he/my husband doctor is the one afflicted. And I have to be the strong one, the “care” giver, the one who deals with so many details of the aspect of care. I care – moved, touched, wounded, affected, hurt – I care. But caring has become a business, a fee for service type of transaction where you pay and in exchange you get – not an act, not a feeling, just the business of care-giving.

Maybe it’s just the gray matter after all. Altruism is a matter of neuroanatomy, with the brains of altruistic types having more “gray matter” in a region of the brain known as the temporoparietal junction.

Maybe, just maybe…those who chose the profession of care-giving should look into that. And, maybe those of us who simply care without being professionals at it – should speak up -and sometimes words are all you have on top of the tears…

 

Why Not Hesitate?

 

My absence from this blog has been unintentional yet mandatory. Writing is part of who I am but I haven’t been who I am lately…

The phone rang like mad at two in the morning. I mechanically answered. The line went dead. Caller ID showed an unrecognizable out-of-area code. Half-asleep and semi-annoyed I went back to my oblivion. A few seconds later – at least that’s what it felt like – blinding lights came on. Mil-second adrenaline driven fear and a herculean effort to wake up and react before I realized it was my son who had just walked in. Was I processing? He lives half an hour away – what on earth was he doing here red-eyed, choking up, silent back tears, words refusing to come out?

“It’s dad,” he mumbled. I held him or he held me – I don’t remember.  It’s heart wrenching to see your child cry – even harder when he is a grown up, strong, powerful, deceptively invincible and on the top of the world – his world. Replaying the scene is sketchy. My wounded memory fades in and out and the words have by now lost all meaning. The phone line at my son’s end had not gone dead. His father got through to him. Thousands of miles away, in Southeast Asia, he suddenly stopped feeling his legs and called seconds before he lost consciousness. He said he loved all three of us – my daughter being in yet another continent – and that this was good bye…

I don’t remember if I said anything. I know I hugged my son; I dialed his father’s cell phone number – but the phone was off. I kept on dialing like a maniac – it was the only thing I could think of doing. Two people sitting in the middle of the night – in the absence of news, hypotheses, fear, shock, anguish and the absolute silence of a phone gone dead – but how about the person at the other end of the line?

Uncertainty, silence, darkness, disease, loss, possibilities and impossibilities, the certainty that this was a mistake, a sick joke, something that really wasn’t. Things and people you take for granted are never really yours to keep. So, what is there to keep you going when life pulls a fast one on you?

It’s now three and a half months later. I stopped feeling, thinking, working, writing, doing the things I used to do before all this happened.

George is paralyzed from the waist down. They performed emergency surgery on his spine in Vietnam and in spite of all odds, he pulled through. His only job was to fight for his life; my first job was to get him back home “safe” – but what was safe really?

Two weeks later, a private air ambulance brought him home to Stanford. The logistics, negotiations and arm twisting that it took to get him home – herculean tasks that now seem so ridiculously simple. They weren’t but it is now irrelevant. Two more months in a Rehabilitation Center following near death stints in the ICU and the impact of human tragedy living inside you – all the time.

Pain, anguish, fear, mourning, denial, anger – tons of emotions that twist and choke the bloodline of hope.

But somehow life never waits for you to recover. You either make it or you don’t. Deal with it and rest later – maybe. But, as you are faced with a whole new reality and as you adjust to a life that is no longer the same, your core is shaken.

I stopped being who I was before. I had to become someone else to deal with George’s trauma and pain. In the last three months, I have done things I never thought possible. My strong personality aside, I faint at the sight of blood. I hate hospitals and all things medical – and I’ve been known to become squeamish with some ugly stuff. Yet, here and now, I have had no choice.

I saw, heard, smelled and touched things, concepts and feelings I did not know existed. Courage/cowardice, compassion/obligation, love/co-dependency – opposite sides to the same coins – a series of complicated emotional reactions to a life-altering injury that has changed our family’s life forever.

“Rehabilitation,’ ‘caregiver,’ ‘spinal cord injury,’ ‘wheelchair,’ ‘paraplegia,’ ‘custodial care,’ ‘occupational therapy,’ ‘handicapped ramp” – words not really part of our vocabulary and now they have become part of our life.

The injury is way too fresh for things to be considered semi-normal. The recovery and adjustment are slow yet steady and every day is different and fluid – some things you conquer, some things you lose. Some people surprise you with their kindness, some with their immaturity, some with their betrayal and abandonment, some with their selflessness and compassion.

The journey is long and tiresome. Some days feel lonely and desperate and some are full of light and hope – and writing this I realize that in reality this is the only way they can be. It’s only human. But, I do listen to my heart and no, I may have temporarily stopped blogging but I will always try – even though this time I hesitated. Promise…

 

Careers, Passion and Other Things

Yes, you’ve watched Steve Jobs’ Stanford Commencement speech a hundred times! But, Larry Smith is hysterically and painfully realistic in his TEDx talk. So, will you simply just ignore your passion? Just like that?

It Shall Be Done!

If there is a will, there is a way! Inspired, moved and catching the fire ignited by Peter Economides, those who attended the National Innovation Conference, organized by the Greek America Foundation forever joined the dream for a new beginning for Greece.

Philanthropy and entrepreneurship combined to create an incubator to feed the future – the future of a country that needs its young to dream and believe in the power of their dreams.

John Pyrovolakis, the founder and CEO of the Innovation Accelerator Initiative, a public-private partnership with the National Science Foundation agreed to help. So, did all of us. We all took a silent pledge to do something more than just be the innocent bystanders in the saga called Greek crisis.

It sounds romantic – it sounds hard, but if you believe it, it can and shall be done!

 

United We Stand

“…A Lion used to prowl about a field in which Four Oxen used to dwell. Many a time he tried to attack them; but whenever he came near they turned their tails to one another, so that whichever way he approached them he was met by the horns of one of them. At last, however, they fell a-quarrelling among themselves, and each went off to pasture alone in a separate corner of the field. Then the Lion attacked them one by one and soon made an end of all four…”
Aesop. (Sixth century B.C.)  Fables.
The Four Oxen and the Lion

Getting ready for the New York National Innovation Conference (NIC) organized by the Greek America Foundation, I can’t help but think deeply about my Greekness.

Over 500 “Greeks” and -I use the term loosely to include philhellenes and diaspora Greeks – are coming together to think about innovation, hope, change and all these ideas and actions worth sharing and implementing to support Greece during these challenging times. NIC isn’t for everyone… It’s for people who want to listen and learn… people who want to be provoked and be inspired. It’s for people who are interested in changing the world.

So many things become irrelevant when it comes to helping out. As Matthew Bogdanos, one of the presenters said to me: “it’s time to roll up our sleeves and work hard now.” Paul Evmorfidis used different words expressing the same idea: “We have been sitting pretty in our living room for a long time – now it’s the time to stand up and get to work…” Marie Bountrogianni has worked long and hard to be the catalyst for coalitions who can go on and create great stuff.

Greg Pappas, the heart and soul of this event put it right in one of his posts. This is all about collaboration. No time for bickering, complaining, fighting, crying wolf or pointing fingers.

I am smiling. Will Aesop’s wisdom sip through and make us all stand united finding our voice, our power, our collective tribal power to rise and fight back?

And will the rest of our “tribe” on the other side of the Atlantic open and listen and stand united with all of us? After all, Aesop and history both have been proven right.

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